For wish mom, Lindsey, the best part of the wish experience was working with Daniel’s volunteers to come up with the perfect wish. “They got to know our family… and they got to know Daniel’s strengths and limitations. They asked: What does Daniel love?”
That’s right. Wish-granting volunteers are on the front lines, transforming the lives of local children with critical illnesses.
When volunteers Kimberlee and Maria spent time with Daniel’s family, it became clear what Daniel loved most: music.
For this spirited three-year-old with a rare mitochondrial disease that causes neuro-degeneration, music is his special outlet. Daniel smiles to the music. He dances to the music. However, due to limited fine motor skills, Daniel had never been able to turn on his own music. And, without the words to communicate, Daniel wasn’t able to ask someone else to turn on the music easily.
Wish-granting volunteers Kimberlee and Maria didn’t spend time focusing on what Daniel couldn’t do; they immediately started researching ways that Daniel could have access to his very own music. After brainstorming with the family and even reaching out to Daniel’s medical team, they were able to come up with technologies that would allow him the chance to experience music independently. On the day his wish came true, Daniel received a special plush frog that has a button that Daniel is able to operate to listen to music. He also received blue tooth speakers that he could operate specially from his own new ipad.
Daniel’s mom, Lindsey said, “His wish day was such a good day. I’ve never seen Daniel light up like he did that day. I couldn’t have even imagined. It came out of nowhere, and it was so awesome.”
Daniel’s wish was much more than a day of fun. “He loves being independent, so it makes him feel really happy to do things on his own.”
For wish-granting volunteers, the reward is not just granting wishes. It’s being a part of something that brings joy to everyone involved.
Kimberlee said, “I volunteer with Make-A-Wish for the smiles, like Danny’s, and the reward of knowing that I’m making a difference in a family’s life, even if it is just a tiny difference.”
For wish-granting volunteer, Maria, delivering joy to deserving children is the most important thing. She said, “It gives me joy that Daniel is enjoying his beloved music now, and he’s happier. Watching him dancing and smiling was wonderful.”
The wish impacts Daniel and his family daily. His mom said, “He’s been using his wish every single day…all the time.”
Thanks to volunteers and donors, Daniel’s now able to experience the joys of music…all by himself.
Do you want to bring joy to kids like Daniel? Right now we don’t have enough volunteers to grant wishes in our territory.
Sign up to become a volunteer today
Special thanks: The Bungie Foundation, Domino’s Pizza, wish-granting volunteers Maria and Kimberlee